Into the Penetrable Walls of Miggy

25 May 2014

Self Introduction

With just 2 weeks prior to the opening of classes for school year 2014-2015, I have to get him ready with a self introduction for grade 5 in his new school.

24 May 2014

Flow Free

His most recent favorite. The Flow Free.

Look how well he does it. Perfect!

23 May 2014

Banoffee Ice Cream Pie

A brother-sister teamwork.

This was actually a Banoffee fail. The toffee was a bit runny and should have been cooked a little longer.

It was so generous that it did not set. To remedy this, we put it in the freezer. Voila! It came out to be the best tasting Banoffee pie ever! Cake and ice cream packed in one! Such a short life, though. It survived only for 2 days.

21 May 2014

Jeep

"Mommy, I will make my K-Zone project."

It took him around 30 mins to assemble his jeep. Following the steps enumerated on the page, he was able to do this independently.

For any typical child, this is way too ordinary, outdated, probably shrugged off and wouldn't even receive praises; but for any parent of a special child, this is a major milestone. Too grand and deserving of claps, congratulations, hugs, and even an ice cream cup and a slice of his favorite cake.

16 May 2014

Excited for Grade 5

Where else would any Pinoy go to shop for school supplies? At the National Book Store!

"Natural book store" is what Miggy calls it.

02 May 2014

Word Searches

This album is actually a mom-session. These word searches are all free printable materials from the web. I always have them in a folder, ready for our study time. Variations in activities make our sessions more attractive, more fun and less boring than the traditional style. And of course, at the end of every session is a treat or a reward. Treats and rewards could be as simple as a movie (dvd), more game time, a sweet, bubble time, a star, a magazine, a cd, a burger, a bike ride, a little toy free from a kiddie meal, or simply a promise to buy him something he really, really likes for a later date. And sometimes for a later, later, later date that we know he will never ever forget because he will remind us every single day, such as: "Ate Clarisse will buy a green iPhone for Miggy in 2017."

01 May 2014

Speech Session, Reading Comprehension

Today's speech session is reading comprehension.
Teacher Justine (Miggy's speech therapist): Miggy, if you get 10 sad faces, you'll have no TV time this weekend.

An hour after, he got only 9 sad faces. We headed home with obvious delight on his face. A happy weekend ahead.

26 March 2014

Recognition Day 2014

An academic year endeavored and won. Now ready for grade five.

22 March 2014

Trip to a Rice Mill

"Miggy, this is where and how your rice is milled," I told him as we wandered around the mill.

I had seen several rice mills when I was little. My dad used to take me along during after every harvest season. We owned a huge rice field in Bulacan in the sixties to the eighties and we were lucky we never had to buy rice as all six of us, 5 girls and 1 boy, were growing up. The price of rice during that time was quite high and volatile. The rice mills I had been to were all old fashioned, rusty, dark and smelled of chicken poop.

A few hours before we reached the mill, we were all wondering how a rice mill could have costed too much.

"Oh" was singly what came from my mouth when we saw the 30 million pesos mill.

11 March 2014

Life Coaching for New Sinai Educational System of Santa Rosa Laguna

A very, very warm hello to friends at Sinai Educational System of Santa Rosa Laguna. It was a wonderful feeling being surrounded by this receptive and sensitive audience.

What did I life-coach for these students? By the way, these students are mostly nursing, education and psychology graduates already. Some are caregiver students.

When asked what their most memorable experience was during their retreat, majority of them liked my session (according to Mrs. Lilia Del Barrio, their professor and retreat coordinator) the best. It was easy, actually almost an impromptu. I didn't need any research or practice at all. I just told them my story, my first-hand experience with autism which made them cry. I just snatched a few pages from the book I have been writing for almost 5 years. All throughout my 2-hour sharing, Miggy was walking in and out of our session. He sat in one of the vacant chairs beside a young female student who was crying then. This student actually has a special sibling.
"Don't cry," Miggy said as he wiped her tears away, and all the more she cried.

08 March 2014

4th Grading Projects

A week before the deadline, Miggy already finished his school projects.
-Keyboard drawing
-Phases of the Moon

19 February 2014

Cursive Writing

5 pages of cursive writing practice. One page for each day. The following day before going to school, I make him read a page.

With my initial instructions: Miguel, you read properly so I will not have you repeat from the start. Not the cartoon voice. And you have to pause when there's a comma, and stop when there's a period. Okay, Miggy?

"Yes, mommy."

"The space shuttle is NASA's space transportation system, designed to carry astronauts and cargo to and from Earth orbit. The first space shuttle flight took place in 1981. The space shuttle fleet is scheduled to be retired in 2010. When the shuttle program ends, the space shuttle will have been launched on about 130 missions."

He is used to the routine. Every morning if we still have time, I make him read a page or two of a book. I make sure that everyday we do something educational. And we never missed a single day. Even during vacation and holidays, we have "study time." We discuss the schedule and I make him write it. Of course at the end of study time, there should be a treat: GAME TIME!

Any time of the day and just about any place could be a learning experience for both of us. It could happen on the way to school, in the bathroom, while watching TV together, or any time I am with him. I don't waste any opportunity for him to learn. Educating this special child doesn't mean all books, videos, answering work sheets and those sorts of standard learning. Improvisation is the key. Parents and teachers have to be inventive and resourceful. Just look around you and you'll discover there are actually a lot of academic use in everything.

13 February 2014

SM Art Gallery Photo Exhibit, 2014 Colors of A Spectrum Photography workshop

Proudly (and humbly), I present to you, my dear blog followers, these pictures taken this evening (Feb. 13, 2014) at the opening of COLORS OF A SPECTRUM PHOTOGRAPHY WORKSHOP photo exhibit at the SM Art Gallery, lower basement of SM City Baguio.

02 February 2014

Miggy's 4th Photography Workshop, Philippine Military Academy

Dear friends,

This is his 4th participation in the yearly photography workshop, COLORS OF A SPECTRUM, by the Autism Society of the Philippines, in partnership with Play and Say Therapy Center, Baguio Photographers Club, Colorworld, Mukha ng Baguio, SM Baguio, and of course, the Philippine Military Academy.

The Colors of A Spectrum Photo Exhibit will open on February 14, 2014 at the Lower Basement of SM Baguio.

Prepare to be surprised as you witness what the world really looks like through the eyes of these special people.

See you all there!

This last set of photos were taken during the PMA's generous offer for a tryout of their "supposedly restricted" training grounds. How sweet! How big a heart despite those broad shoulders, sturdy build, non-smiling faces (during drills, of course) but lots and lots of shiny white teeth and smiles, careful gentleness and genuine patience as they ushered these specials.

Hitting two birds in one stone? Nah!
1. A chance to be paired again with photographer/mentor "The Great LINO TABANGIN."
2. Another supplementary training in photography.
3. Miggy was able to overcome his fear of men in uniform.
4. And his fear of tanks. (And who's not afraid of tanks?! Hey, anybody?????!!)

To all PMAers, we salute you!

Hey, I almost forgot! This took place on January 26, 2014.

4th Year Entries

The following are some of his shots in his 4th photography workshop:

31 January 2014

Holy

Miggy is a constant reminder. He pushes the family closer to God.

"Today is Sunday. It's church day. Mommy, Daddy, Ate and Miggy will get dressed. Let's go to church."

04 January 2014

Peach Graham Cake

This is the only way to make him eat a graham cake - for him to have a hand in making it. Successful!

01 January 2014

Happy New Year

Happy New Year!!! Here's to 2014!

Leave 2013 with peace and hope in your hearts

that this fresh year ahead will be

just as wonderful or maybe even much better.

25 December 2013

Merry Christmas!

Wishing everyone the blessings of faith, the feelings of joy,
the power of love, the magic of forgiveness,
the miracle of prayers, the spell of Christmas,
and the ANYTHING of EVERYTHING!

20 December 2013

Shepherd

Miggy played the role of one of the shepherds in the Nativity, a Christmas presentation by the students of Ridgeview Academy. He almost didn't make it. He had been absent for a week because of a severe asthma attack.

May this documentation of my son's journey through autism inspire all of you. Here, you will see not only my struggles to enter his world, but you will also witness his greatest efforts to fit into mine.

Be inspired with my prayers, hopes, perseverance and endurance in trying to recover my child.
How about you? Do you have stories to tell? You are free to leave your comments and suggestions here. I would love to hear from you.
Be my friend and join me as I break down the not-so-impenetrable-walls of my very special Miggy.

Surprising Autism Information You Need to Know

By Lisa Jo Rudy, About.com Guide

What Do You Really Know About Autism?:

There are plenty of myths about autism spectrum disorders out there. Some folks still believe, for example, that people with autism are all geniuses or mentally challenged. Others believe that people with autism are the result of poor parenting choices. These myths have been soundly debunked, both here and in many other places. But even those of us who are well-grounded in autism basics may be surprised by some of these facts, which are emerging from recent research.

Autism Is a Plural Noun:

Autism is not a single disorder. In fact, mainstream researchers agree that the autism spectrum is probably a collection of multiple disorders with multiple causes, prognoses, and appropriate treatments. Quite a bit of recent research has uncovered a number of distinct genetic differences (some inherited, some spontaneously mutated) that seem to be associated with various types of autism.

We Know What Causes Autism (Sometimes):

We do know what causes autism -- but only in about 20% of cases. Causes include genetic mutations, heredity, pre- and post-natal trauma or exposures to alcohol or drugs, and, in some cases, injury. In addition, some research suggests older parents, environmental pollution, and even pesticides.

Some Kids "Outgrow" Their Autism Diagnoses:

Quite a few children who are diagnosed with autism at a very young age are no longer diagnosable with autism by the time they’re school-aged. The reasons for this are controversial, and range from the possibility of misdiagnosis to ordinary maturation to claims of a cure through behavioral, developmental and/or biomedical interventions. Whatever the reasons, many children who are diagnosed with autism as toddlers will not be diagnosable by the time they're in fifth grade.

There's No Window of Opportunity for Treating Autism:

Early intervention (diagnosis and treatment prior to age three) is very helpful indeed, but there is no “window of opportunity” that slams shut at a certain age. Thus, even children who are diagnosed later or receive less early intervention may do quite well in the long run. The "now or never" approach to autism treatment is a result of media hype -- not research findings. Early intervention does, however, provide a now-or-never opportunity to allow non-verbal children to develop some kind of useful tool for communication (picture cards, signs, or even spelling boards).

Even a Cure May Not Be a Cure:

There is no official “cure” for autism. In fact, researchers like Dr. Susan Levy at Children’s Hospital of Philadelphia argue that even when a young child is no longer diagnosable on the autism spectrum, he is probably still autistic. Issues that may not be of significance for a preschooler (e.g., executive functioning, picking up on complex social cues, etc.) may loom quite large as a child moves through the grades.

Late Talking is Not the End of the World:

Late talking is not an indication of a poor prognosis. Even if a child is not yet verbal at age three or four, she may still do very well in the long run.

Kids with Autism Aren't Always Visual Thinkers:

Children with autism may or may not be visual thinkers. Thus, school programs designed with visual thinking in mind may or may not be appropriate for any individual child with autism.

No One Knows Which Treatments Work for Which Kids:

After many years of research, we still don’t know which treatments are most effective for which children -- or whether one treatment is more effective than another. Behavioral interventions are the best-researched treatments for autism, but even top scientists acknowledge that developmental interventions may or may not be equally useful for any given child. Meanwhile, only two drugs -- Risperdal and Abilify -- have been approved for use with children on the autism spectrum, and neither addresses “core” issues of autism (social/communication deficits).

What Are the Different Names for Autism Spectrum Disorders?

By Lisa Jo Rudy, About.com Guide

Autism is a "spectrum disorder," meaning you can be a little autistic or very autistic. But the diagnoses within the autism spectrum aren't clearly named, nor are the symptoms always the same even within the same diagnosis. What's worse, terms like "severe autism," "mild autism" and "high functioning autism" aren't true diagnoses at all - they're just descriptive terms to help parents and teachers better understand a child's status on the autism spectrum.

What Is the Autism Spectrum?

The "autism spectrum" describes a set of developmental delays and disorders which affects social and communication skills and, to a greater or lesser degree, motor and language skills. It is such a broad diagnosis that it can include people with high IQ's and mental retardation - and people with autism can be chatty or silent, affectionate or cold, methodical or disorganized. "Autism Spectrum" is also another, less formal term to describe the Pervasive Developmental Disorders.

Official diagnoses within the autism spectrum are autistic disorder, pervasive developmental disorder not otherwise specified (PDD-NOS), Asperger syndrome, Childhood Disintegrative Disorder and Rett Syndrome.

What Are Pervasive Developmental Disorders?

"Pervasive Developmental Disorder" is a formal term that means exactly the same thing as the less formal "autism spectrum disorder." As with the autism spectrum, the group of disorders described as pervasive developmental disorders includes autistic disorder, pervasive developmental disorder not otherwise specified (PDD-NOS), Asperger syndrome, Childhood Disintegrative Disorder and Rett Syndrome.

What Is Asperger Syndrome?

Asperger syndrome describes individuals at the highest-functioning end of the autism spectrum. Unlike other autism spectrum disorders, Asperger syndrome is often diagnosed in teens and adults. People with Asperger syndrome generally develop spoken language in the same way as typically developing children, but have a tough time with social communication. These difficulties that become more obvious as they get older and social expectations rise. Because people with Asperger syndrome are often very intelligent - but "quirky" - the disorder is sometimes nicknamed "geek syndrome" or "little professor syndrome."

What Is Mild Autism?

The term "mild autism" is not an official diagnosis. It's simply a more descriptive term than "Asperger syndrome" or "autism." Generally speaking, when people use the term mild autism they are referring to individuals whose symptoms fit an autism spectrum diagnosis, but who has strong verbal skills and few behavioral issues. Those individuals may, however, have significant problems with social communication. They may also have problems coping with too much sensory input (loud noise, bright lights, etc.).

What Is High Functioning Autism?

Like "mild" autism, high functioning autism (sometimes shortened to HFA) is a made-up term that's become more and more commonly used. HFA is a tricky term, because it can be hard to distinguish a person with HFA from a person with Asperger syndrome. The official distinction is that people with HFA had or have speech delays, while people with Asperger Syndrome have normal speech development. But there may also be very real differences in terms of social awareness, personality characteristics, and other traits. The jury is still debating the fine distinctions.

What Is PDD-NOS?

"Pervasive Developmental Disorder Not Otherwise Specified" is a mouthful of words that are often applied to people on the autism spectrum. It describes individuals who don't fully fit the criteria for other specific diagnoses, but are nevertheless autistic. Unfortunately, there is no easy way to define the symptoms of PDD-NOS, which may range from very mild to very severe. As a result, the term is rarely used outside of practioners' offices. Most parents, therapists and teachers prefer to use more descriptive (though less official) terms to describe their children, students and patients with PDD-NOS.

What Is Severe Autism (Autistic Disorder)?

Severe autism is officially termed autistic disorder. It goes by many other names, though, including profound autism, low functioning autism, or classic autism. People with autistic disorder are often non-verbal and intellectually disabled, and may have very challenging behaviors.

What Is Rett Syndrome?

Rett syndrome is a genetic disorder that affects only girls. It is the only one of the autism spectrum disorders that can be diagnosed medically (so far). Girls with Rett syndrome develop severe symptoms including the hallmark social communication challenges of autism. In addition, Rett syndrome can profoundly impair girls' ability to use their hands usefully.

Top 10 Treatments for Autism

By Lisa Jo Rudy, About.com Guide

As you start to dig deeply into the literature on autism treatments, you'll find dozens of available options. Which are the "best" treatments? As the professionals will tell you over and over again, every child's needs are different. The treatments described in this article are among the best known, best researched, and most likely to produce positive results.

1. Applied Behavioral Analysis (ABA)

Applied Behavioral Analysis (ABA)is the oldest and most fully researched treatment specifically developed for autism. ABA is a very intensive system of reward-based training which focuses on teaching particular skills. If any autism-specific therapy is offered by your school and/or covered by your insurance, this will probably be the one.

2. Speech Therapy

Almost all people with autism have issues with speech and language. Sometimes these issues are obvious; many people with autism are non-verbal or use speech very poorly. Sometimes the issues relate not to articulation or grammar but to "speech pragmatics" (the use of speech to build social relationships). Across the board, though, speech and language therapy is likely to be helpful for people with autism.

3. Occupational Therapy

Occupational therapy focuses on building daily living skills. Since many people with autism have delays in fine motor skills, occupational therapy can be very important. Occupational therapists may also have training in sensory integration therapy - a technique which may help autistic people manage hypersensitivity to sound, light, and touch.

4. Social Skills Therapy

One of autism's "core deficits" is a lack of social and communication skills. Many children with autism need help in building the skills they need to hold a conversation, connect with a new friend, or even navigate the playground. Social skills therapists can help out setting up and facilitating peer-based social interaction.

5. Physical Therapy

Autism is a "pervasive developmental delay." Many autistic people have gross motor delays, and some have low muscle tone (they're unusually weak). Physical therapy can build up strength, coordination, and basic sports skills.

6. Play Therapy

Strange as it may sound, children with autism need help learning to play. And play can also serve as a tool for building speech, communication, and social skills. Play therapists may have training in particular therapeutic techniques such as Floortime or The Play Project - or they may incorporate play therapy into speech, occupational or physical therapy.

7. Behavior Therapy

Children with autism are often frustrated. They are misunderstood, have a tough time communicating their needs, suffer from hypersensitivities to sound, light and touch ... no wonder they sometimes act out! Behavior therapists are trained to figure out just what lies behind negative behaviors, and to recommend changes to the environment and routines to improve behavior.

8. Developmental Therapies

Floortime, Son-rise, and Relationship Development Intervention (RDI) are all considered to be "developmental treatments." This means that they build from a child's own interests, strengths and developmental level to increase emotional, social and intellectual abilities. Developmental therapies are often contrasted to behavioral therapies, which are best used to teach specific skills such as shoe tying, tooth brushing, etc.

9. Visually-Based Therapies

Many people with autism are visual thinkers. Some do very well with picture-based communication systems such as PECS (Picture Exchange Communication). Video modeling, video games and electronic communication systems also tap into autistic people's visual strength to build skills and communication.

10. Biomedical Therapies

Biomedical treatments may include pharmaceuticals, but most often biomedical treatments for autism are based on the Defeat Autism Now! (DAN!) approach to autism therapy. Doctors trained in the DAN! "protocol" prescribe special diets, supplements, and alternative treatments. None of these treatments have been approved by the FDA or CDC, but there are many anecdotal stories of positive outcomes.