Into the Penetrable Walls of Miggy

15 July 2011

Small to Big

Miggy's experiment:

Two expandables (a little princess and a tiny dragon) were left to soak overnight in a bowl of water..... and voila!

What happened to the little princess and the little dragon? I asked.

"Became big," he answered.

12 July 2011

Yesterday, he went home (from school) with a pad of stickers. Thinking that he might have taken it from his teacher's drawer or it might have been grabbed from a schoolmate, I asked: Where did you get that?

"Win a prize, mommy. Win a prize."

This morning, I was surprised to see his 3 artworks displayed on the school's bulletin board. Oh, so that was how he earned those stickers. Stickers for a job well done!

"Miggy is the winner!" he told his daddy.

02 July 2011

Lego Dream House

Shown here is Miggy's creative Lego play this morning.

31 May 2011

"Not the Disney Channel"

For more than a year, Miggy has been watching only one television channel: the Cartoon Network. Last night, he and his sister watched the "Up" movie on Disney Channel. Good! A change of routine, I thought so. Wow, he's ready for a big change. Well, he's not.

Last night, he woke up at 2am and didn't sleep until 5am. He kept on saying: "Not the Disney Channel. Only the Cartoon Network. Do not watch the Disney Channel."

And over and over again, I assured him and whispered: Okay, okay. Not the Disney Channel.

This morning when he woke up, near tears he said: "Mommy, Miggy will not watch the Disney Channel. Only the Cartoon Network."

It wasn't until I hugged him really tight and said yes that he stopped.

24 May 2011

Holy Miggy

30 April 2011

Project-Making

What are you doing, Miggy? I asked.
"Cutting the pictures."
Complete sentence, I prompted.
"I am cutting the pictures and making a project."

Lesson of the Day: PRAY

This was posted by Miggy's tutor, Teacher Louella on Tots' Thoughts Tutorial Center homepage.

Miggy and I were reading words with the long a sound today when we came across the word pray, I asked what he says when he prays and he said "Thank You" I asked what else, he said "thank You God".
Sometimes when we pray all we do is ask we forget to say thanks. Thank you Miggy for the reminder.

11 April 2011

Turtle Art

Hi! So sorry, I haven't blogged for quite some time. I'm saving all my entries for my book. It's coming out soon.

14 March 2011

Share your story

Hi, readers!

I invite you to be part of my upcoming book. Share your experiences in raising your children with special needs. We are not alone in this battle. There are many out there wanting to hear our stories.

Send them to my email ad: yolette_cuevas@yahoo.com

Thank you very much. I would love to hear from you.

12 March 2011

The Japan Tsunami, as viewed by the Autistic Mind

Yesterday, Japan was hit by a magnitude 8.9 earthquake which triggered a massive tsunami. We watched it on CNN News the minute we got home from Miggy's school.

That night:
Mommy: Miggy, can we turn off the dvd? Let's watch the news.
Miggy: "Not the news! Only the Dragon Tales!"
"Mommy, remove the earthquake. Throw in the garbage can. Remove the big wave and the flood. Make sand castles on the beach."

Again, I was dumbstruck. He knew what was happening. He saw the relation between what's evil and what's not, what's supposed to be and what's supposed to be not. Recovering, I grabbed my pen and wrote it down in my diary. Another milestone.

02 March 2011

In the future: a chef

This post is lovingly dedicated to all of Miggy's classmates: Blessy, Syzzle, Kaychelle, Johann, Allen, and RJ, who at a very young age show compassion, understanding, and responsibility toward their "special" classmate. It always leaves a smile on my face every time I see them together. Cheers to their parents too for raising such wonderful kids.
And of course, to Teacher Tina who never tires of teaching Miggy social behavior and academic skills, and always bringing him out of his self-imposed seclusion with her powerful voice as she calls out "Miiiigggggyyyy!!!"

In the future: A chef
I will be designing the layout for the school's yearbook. My theme for the grade 1 is: What do I want to be when I grow up? All parents of Miggy's classmates probably already know what their children aspire to be in the future. Now, I wonder if my Miggy has any dream at all. I'm thinking that this is a mistake. How can I ask him a question so meaningless to his autistic mind? How can he envision himself as a grownup when he does not even know what "future" means? The very simple "tomorrow" took him almost forever to discern, how much more with a vague and a broader "future"?

Uncertain if I could push him for an answer, I tried.

Mommy: Miggy, you listen. Johann wants to be a soldier. Blessy wants to be a teacher. Syzzle wants to be a nurse. Allen wants to be a doctor. How about you, Miggy? What do you want to be?

Miggy answered quickly, "a chef!"

Oh, probably too inspired by the movie, Ratatouille.

26 February 2011

Old Man

Using his grandmother's walker, "Miggy became an old man," he said.

09 February 2011

Finally.... an Emotional Attachment

Night of January 25, 2011:

Reading homework.

"No homework! I don't like homework!"

No choice. He read the poem, frequently pausing and looking elsewhere :

"Everybody says

I look just like my mother.

Everybody says

I'm the image of Aunt Heather.

Everybody says

My nose is like my father's.

But I want to look like me,

Why can't they let me be?"

Mommy: Everybody says I look just like my.....?

Miggy: "Father."

Miggy: "Aunt Heather."

Mommy: No, you think. Read the poem again.

In all the 4 poems he read, he gave me only 50% correct answers. Why? He was upset that I turned the dvd off while his most current favorite (Veggie Tales) was playing. But when before the questions, I reminded him to answer properly so that I would give him a surprise, he answered correctly.

Mommy: Next time we do your homework, you answer correctly, huh Miggy?

Miggy: "Yes, answer correctly."

Dear readers, I know the following may sound cruel, abusive and traumatizing. Condemn me, curse me, I'll accept. But please let this moment be mine. Forgive me, this was my only way of checking. Believe me, I felt so bad. But in the end, I was rewarded. Well, it went like this:

I am not your mother anymore. Naty (our maid) is your mother, I said to him.

He looked at me, tears poured down his chubby cheeks, "Yolette only, not Ate Naty! Ate Naty is not my mother! My mother is Yolette!"

Pushing for more of this new emotion he displayed for the first time, I added: Your daddy is not Gerry. My son is RJ, not Miggy.

All the more he cried. Face all red, tears pouring non-stop, liquid dripping from his nose, he said: "My daddy is Gerry! Your son is not RJ! Miggy is your son!"

I hugged him tight, and savored the moment.

I have long waited for this. Finally, after 8 years, 5 months, and 21 days! That was his first display of emotional attachment to me.

02 February 2011

Dinner Surprise

One late afternoon, I found this on my work table after I woke up from a quick nap.

Wow! What is this?, I asked.

Miggy replied, "A fish dinner." (which he made out of clay, just for me! Just for me!)

24 January 2011

Not a schoolday

Yesterday, we were not able to attend the Sunday mass which broke Miggy's routine.

This morning:

Whining, Miggy said, "Today is Sunday, not Monday. No school! It's not a schoolday. It's a churchday. Miggy wear civilian clothes, not the green uniform."

12 January 2011

Apology

Miggy tossed his sharpener at Kaychelle and accidentally hit the corner of her eye.

06 January 2011

"I am a big boy."

Sept. 14, 2010

Mom: Come here, my baby.
Miggy: "You're not a baby."
(He still has difficulty with pronouns.)
Mom: Huh?
Correcting himself, he said: "I am not a baby. I am a big boy."

*****************
Miggy, you are very cute, I told him.
"Miggy is not cute. Miggy became ugly. Cutie became ugly."
He disagrees with anything I say when he doesn't get what he wants, like a show on tv. I do not allow him to watch the Power Rangers and Kamen Rider on Cartoon Network because of their violent content.

01 January 2011

Torotot

"Mommy, close the window. Stop the fireworks," cried Miggy.

He didn't get up for the media noche and didn't witness the fireworks display by Camp John Hay and Baguio Country Club. Miggy and I stayed in bed, with my hands covering both of his ears. A little later, his dad and sister joined us.

* A week before the New Year, I had already taken out these horns (we call them Torotot here in the Philippines) from the cabinet. Ready and waiting for the event. But then I was hesitant to give them out to my family minutes before the clock struck twelve. Why? Miggy never liked the "Big Bang." Maybe for now and the years to come, these torotots will have to remain quiet...... until Miggy is ready.

30 December 2010

Developmental Assessment Dec. 11, 2010

Date of Evaluation: December 11, 2010

Date of Birth: August 4, 2002

Chronological age: 8 yrs / 4 mos.

- Mainstream education at Ridgeview Academy, grade 1

- Once a week speech therapy at Play and Say Therapy Center

- Once a week tutorials at Tot's Thoughts Tutorial Center

Present Developmental Profile:

Locomotor 6 yrs level

Personal / Social 7 1/2 - 8 yrs level

Hearing and Speech 5 1/2 yrs level

Eye and Hand Coordination 7 yrs level

Performance 8 yrs level

Practical Reasoning 6 1/2 yrs level

No mental retardation.

Clinical Impression: Autism Spectrum Disorder

Recommendations:

1. Continue speech therapy.

2. Continue present school placement with accommodations.

3. Behavior management - firm kindness.

4. Social skills training.

5. Developmental review after 1 year.

Assessment made by Dra. Millicent Mae Fronda - De Vera (Developmental Pediatrician, Notre Dame de Chartres Hospital)

May this documentation of my son's journey through autism inspire all of you. Here, you will see not only my struggles to enter his world, but you will also witness his greatest efforts to fit into mine.

Be inspired with my prayers, hopes, perseverance and endurance in trying to recover my child.
How about you? Do you have stories to tell? You are free to leave your comments and suggestions here. I would love to hear from you.
Be my friend and join me as I break down the not-so-impenetrable-walls of my very special Miggy.

Surprising Autism Information You Need to Know

By Lisa Jo Rudy, About.com Guide

What Do You Really Know About Autism?:

There are plenty of myths about autism spectrum disorders out there. Some folks still believe, for example, that people with autism are all geniuses or mentally challenged. Others believe that people with autism are the result of poor parenting choices. These myths have been soundly debunked, both here and in many other places. But even those of us who are well-grounded in autism basics may be surprised by some of these facts, which are emerging from recent research.

Autism Is a Plural Noun:

Autism is not a single disorder. In fact, mainstream researchers agree that the autism spectrum is probably a collection of multiple disorders with multiple causes, prognoses, and appropriate treatments. Quite a bit of recent research has uncovered a number of distinct genetic differences (some inherited, some spontaneously mutated) that seem to be associated with various types of autism.

We Know What Causes Autism (Sometimes):

We do know what causes autism -- but only in about 20% of cases. Causes include genetic mutations, heredity, pre- and post-natal trauma or exposures to alcohol or drugs, and, in some cases, injury. In addition, some research suggests older parents, environmental pollution, and even pesticides.

Some Kids "Outgrow" Their Autism Diagnoses:

Quite a few children who are diagnosed with autism at a very young age are no longer diagnosable with autism by the time they’re school-aged. The reasons for this are controversial, and range from the possibility of misdiagnosis to ordinary maturation to claims of a cure through behavioral, developmental and/or biomedical interventions. Whatever the reasons, many children who are diagnosed with autism as toddlers will not be diagnosable by the time they're in fifth grade.

There's No Window of Opportunity for Treating Autism:

Early intervention (diagnosis and treatment prior to age three) is very helpful indeed, but there is no “window of opportunity” that slams shut at a certain age. Thus, even children who are diagnosed later or receive less early intervention may do quite well in the long run. The "now or never" approach to autism treatment is a result of media hype -- not research findings. Early intervention does, however, provide a now-or-never opportunity to allow non-verbal children to develop some kind of useful tool for communication (picture cards, signs, or even spelling boards).

Even a Cure May Not Be a Cure:

There is no official “cure” for autism. In fact, researchers like Dr. Susan Levy at Children’s Hospital of Philadelphia argue that even when a young child is no longer diagnosable on the autism spectrum, he is probably still autistic. Issues that may not be of significance for a preschooler (e.g., executive functioning, picking up on complex social cues, etc.) may loom quite large as a child moves through the grades.

Late Talking is Not the End of the World:

Late talking is not an indication of a poor prognosis. Even if a child is not yet verbal at age three or four, she may still do very well in the long run.

Kids with Autism Aren't Always Visual Thinkers:

Children with autism may or may not be visual thinkers. Thus, school programs designed with visual thinking in mind may or may not be appropriate for any individual child with autism.

No One Knows Which Treatments Work for Which Kids:

After many years of research, we still don’t know which treatments are most effective for which children -- or whether one treatment is more effective than another. Behavioral interventions are the best-researched treatments for autism, but even top scientists acknowledge that developmental interventions may or may not be equally useful for any given child. Meanwhile, only two drugs -- Risperdal and Abilify -- have been approved for use with children on the autism spectrum, and neither addresses “core” issues of autism (social/communication deficits).

What Are the Different Names for Autism Spectrum Disorders?

By Lisa Jo Rudy, About.com Guide

Autism is a "spectrum disorder," meaning you can be a little autistic or very autistic. But the diagnoses within the autism spectrum aren't clearly named, nor are the symptoms always the same even within the same diagnosis. What's worse, terms like "severe autism," "mild autism" and "high functioning autism" aren't true diagnoses at all - they're just descriptive terms to help parents and teachers better understand a child's status on the autism spectrum.

What Is the Autism Spectrum?

The "autism spectrum" describes a set of developmental delays and disorders which affects social and communication skills and, to a greater or lesser degree, motor and language skills. It is such a broad diagnosis that it can include people with high IQ's and mental retardation - and people with autism can be chatty or silent, affectionate or cold, methodical or disorganized. "Autism Spectrum" is also another, less formal term to describe the Pervasive Developmental Disorders.

Official diagnoses within the autism spectrum are autistic disorder, pervasive developmental disorder not otherwise specified (PDD-NOS), Asperger syndrome, Childhood Disintegrative Disorder and Rett Syndrome.

What Are Pervasive Developmental Disorders?

"Pervasive Developmental Disorder" is a formal term that means exactly the same thing as the less formal "autism spectrum disorder." As with the autism spectrum, the group of disorders described as pervasive developmental disorders includes autistic disorder, pervasive developmental disorder not otherwise specified (PDD-NOS), Asperger syndrome, Childhood Disintegrative Disorder and Rett Syndrome.

What Is Asperger Syndrome?

Asperger syndrome describes individuals at the highest-functioning end of the autism spectrum. Unlike other autism spectrum disorders, Asperger syndrome is often diagnosed in teens and adults. People with Asperger syndrome generally develop spoken language in the same way as typically developing children, but have a tough time with social communication. These difficulties that become more obvious as they get older and social expectations rise. Because people with Asperger syndrome are often very intelligent - but "quirky" - the disorder is sometimes nicknamed "geek syndrome" or "little professor syndrome."

What Is Mild Autism?

The term "mild autism" is not an official diagnosis. It's simply a more descriptive term than "Asperger syndrome" or "autism." Generally speaking, when people use the term mild autism they are referring to individuals whose symptoms fit an autism spectrum diagnosis, but who has strong verbal skills and few behavioral issues. Those individuals may, however, have significant problems with social communication. They may also have problems coping with too much sensory input (loud noise, bright lights, etc.).

What Is High Functioning Autism?

Like "mild" autism, high functioning autism (sometimes shortened to HFA) is a made-up term that's become more and more commonly used. HFA is a tricky term, because it can be hard to distinguish a person with HFA from a person with Asperger syndrome. The official distinction is that people with HFA had or have speech delays, while people with Asperger Syndrome have normal speech development. But there may also be very real differences in terms of social awareness, personality characteristics, and other traits. The jury is still debating the fine distinctions.

What Is PDD-NOS?

"Pervasive Developmental Disorder Not Otherwise Specified" is a mouthful of words that are often applied to people on the autism spectrum. It describes individuals who don't fully fit the criteria for other specific diagnoses, but are nevertheless autistic. Unfortunately, there is no easy way to define the symptoms of PDD-NOS, which may range from very mild to very severe. As a result, the term is rarely used outside of practioners' offices. Most parents, therapists and teachers prefer to use more descriptive (though less official) terms to describe their children, students and patients with PDD-NOS.

What Is Severe Autism (Autistic Disorder)?

Severe autism is officially termed autistic disorder. It goes by many other names, though, including profound autism, low functioning autism, or classic autism. People with autistic disorder are often non-verbal and intellectually disabled, and may have very challenging behaviors.

What Is Rett Syndrome?

Rett syndrome is a genetic disorder that affects only girls. It is the only one of the autism spectrum disorders that can be diagnosed medically (so far). Girls with Rett syndrome develop severe symptoms including the hallmark social communication challenges of autism. In addition, Rett syndrome can profoundly impair girls' ability to use their hands usefully.

Top 10 Treatments for Autism

By Lisa Jo Rudy, About.com Guide

As you start to dig deeply into the literature on autism treatments, you'll find dozens of available options. Which are the "best" treatments? As the professionals will tell you over and over again, every child's needs are different. The treatments described in this article are among the best known, best researched, and most likely to produce positive results.

1. Applied Behavioral Analysis (ABA)

Applied Behavioral Analysis (ABA)is the oldest and most fully researched treatment specifically developed for autism. ABA is a very intensive system of reward-based training which focuses on teaching particular skills. If any autism-specific therapy is offered by your school and/or covered by your insurance, this will probably be the one.

2. Speech Therapy

Almost all people with autism have issues with speech and language. Sometimes these issues are obvious; many people with autism are non-verbal or use speech very poorly. Sometimes the issues relate not to articulation or grammar but to "speech pragmatics" (the use of speech to build social relationships). Across the board, though, speech and language therapy is likely to be helpful for people with autism.

3. Occupational Therapy

Occupational therapy focuses on building daily living skills. Since many people with autism have delays in fine motor skills, occupational therapy can be very important. Occupational therapists may also have training in sensory integration therapy - a technique which may help autistic people manage hypersensitivity to sound, light, and touch.

4. Social Skills Therapy

One of autism's "core deficits" is a lack of social and communication skills. Many children with autism need help in building the skills they need to hold a conversation, connect with a new friend, or even navigate the playground. Social skills therapists can help out setting up and facilitating peer-based social interaction.

5. Physical Therapy

Autism is a "pervasive developmental delay." Many autistic people have gross motor delays, and some have low muscle tone (they're unusually weak). Physical therapy can build up strength, coordination, and basic sports skills.

6. Play Therapy

Strange as it may sound, children with autism need help learning to play. And play can also serve as a tool for building speech, communication, and social skills. Play therapists may have training in particular therapeutic techniques such as Floortime or The Play Project - or they may incorporate play therapy into speech, occupational or physical therapy.

7. Behavior Therapy

Children with autism are often frustrated. They are misunderstood, have a tough time communicating their needs, suffer from hypersensitivities to sound, light and touch ... no wonder they sometimes act out! Behavior therapists are trained to figure out just what lies behind negative behaviors, and to recommend changes to the environment and routines to improve behavior.

8. Developmental Therapies

Floortime, Son-rise, and Relationship Development Intervention (RDI) are all considered to be "developmental treatments." This means that they build from a child's own interests, strengths and developmental level to increase emotional, social and intellectual abilities. Developmental therapies are often contrasted to behavioral therapies, which are best used to teach specific skills such as shoe tying, tooth brushing, etc.

9. Visually-Based Therapies

Many people with autism are visual thinkers. Some do very well with picture-based communication systems such as PECS (Picture Exchange Communication). Video modeling, video games and electronic communication systems also tap into autistic people's visual strength to build skills and communication.

10. Biomedical Therapies

Biomedical treatments may include pharmaceuticals, but most often biomedical treatments for autism are based on the Defeat Autism Now! (DAN!) approach to autism therapy. Doctors trained in the DAN! "protocol" prescribe special diets, supplements, and alternative treatments. None of these treatments have been approved by the FDA or CDC, but there are many anecdotal stories of positive outcomes.